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motherknowsbest 
Member since Jul 13, 2010

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Recent Comments

Re: “Zoo Jam has financial problems UPDATE

"This sounds like the August in Arkansas debacle in the early 90's that Mark Abernathy put on. Lot of people including our company never got paid."

Neither did we, even after turning in over $1500 of their fake dollars. We were told Ringo had to get paid first.

Posted by motherknowsbest on 10/04/2011 at 4:42 PM

Re: “Sharks circling in Bryant

I have heard from a high authority that Mr. Tripp rather sucks as a musician. So I say it is a good thing he has a day job doin' tricks...

Posted by motherknowsbest on 03/15/2011 at 3:40 PM

Re: “A plea for community care

Sound Policy--the lack of group homes are one of the community alternatives that the lawsuit is addressing as a failure to deinstitutionalize. It is a complicated mess that has evolved, probably seeded with good intentions 75 years ago. I have perspective on the matter from multiple points of view, having been an HDC employee, regulatory overseer and a grandmother of a severely delayed 11 year old beautiful girl who is nonverbal, has seizures daily and is of course, not toilet trained. She remains at home and receives no services outside of her classroom.

There are many thumbs in the funding pie, all claiming to come from the interest of the client. One only needs to examine what is happening at the Alexander HDC to confirm this. This is a facility that the State "volunteered" to shut down after atrocious events were made public. But what has actually transpired? Three or four clients were moved and the money (not Federal funds, those were axed) keeps pouring in from the State. The facility remains decertified but operating as usual. I don't get it...

It sounds like the group home you are familiar with has managed to treat the residents with affection and dignity in a homelike environment. That is the desired outcome. Are all HDC employees evil? Absolutely not. However, most are underpaid and undersupervised while providing the most intimate care with limited resources to highly vulnerable clients that are too many in number to be considered as individuals when dishing out food or assisting with showers. No matter how good the heart of the employee, the task becomes like Lucy in the candy shop. Too many, too fast, not enough hands. The first thing sacrificed is the dignity of clients, because keeping a job is a higher priority. And I can't blame them.

The oversight findings of the ICF/MR facilities are public and the entire history of deficiencies cited are available via FOIA request to the Office of Long Term Care, Division of Medical Services, Arkansas Department of Human Services.(501-682-8540).

Even the most complicated medical conditions could be served in a community or home setting with support under most circumstances. It happens all the time with non-developmentally delayed people. The direct care givers in the facilities are not Registered Nurses. When medical help is needed in the facility, a nurse can be summoned. In the community, Home Health can provide nurses or 911 is available for emergencies. Small community ICF/MR certified group homes do exist and often share a full time nurse. They are located in neighborhoods like real poeple live in, not an identified "leper" colony. But property values often supercede human values for the unenlightened and that is a real roadblock in some areas.

What we hope for with my granddaughter is that she will be able to be a part of daily family activities, enjoy family outings, support her in her bad moments and rejoice in her progress, slow that it is. We want this to be the norm for her, not just a weekly (or, as in other cases, yearly) visit from someone she used to know. The State is willing to pay $110,000 a year to keep her in an HDC, but not the $12,000 per year it would cost to have 3 hours of service a day in the home. Fifteen hours a week would allow her mom to help her sibilings with their homework, prepare dinner, and get bedtime routines underway. Although the cost of her remaining in her home with her family cannot be measured in dollars, neither can the benefits. So their struggle will continue.

Every situation is unique, but the lack of choices is universal for these families. It doesn't make sense.



Posted by motherknowsbest on 09/11/2010 at 1:30 PM

Re: “A plea for community care

This lawsuit is not the first time the Feds have had to step in on behalf of the citizens of this state when laws are ignored, nor did it happen without warning. The situation Mr. Cook describes is not a separate issue from closing HDCs. If the currently funded money followed the client it would allow for $110,000 per year for in home services per client. Sounds workable to me. And if it were your child Archaeopterx, you would be more than sorry for the situation. You, like Mr. Cook, would work with all the parental fibers in your body to make it right.

1 like, 0 dislikes
Posted by motherknowsbest on 09/11/2010 at 10:30 AM

Re: “Human Development Center on trial

arch--you have wrongly attacked me before on this and I don't have any interest in retreading the past. I don't speak on matters of which I know nothing, a good lesson MY mother taught me. Perhaps you should learn a little something about me before you get so defensive. You might be quite surprised at what I know and how I learned it.
Love, Mom

Posted by motherknowsbest on 09/08/2010 at 6:50 PM

Re: “Human Development Center on trial

I cannot think of any other human condition that is treated with such extreme isolation and segregation as the intellectually handicapped are in these type of facilities. I strongly speculate it has as much or more to do with their physical appearance as their mental limits. eLwood, what if it were a Colony of 500 amputees? Or COPD patients? Or everyone over the age of 70? Don't they seem to integrate into the community just fine with a little orthopedic or respiratory or home health assistance? The issue is to have services available in the real world, for the benefit of the client. I think it is easy for the public (read: no family members affected) to confuse mental illness with mental retardation (to use the old terminology). These are autistic, seizure disordered, cerebral palsied and/or mentally challenged humans. Why must they be hidden away?

Posted by motherknowsbest on 09/08/2010 at 2:40 PM

Re: “The cars — and the plane

I try to never use a state car, but I can vouch for the toilet paper. Not Charmin Aloe and E quality, but better than the thin see-through stuff that hangs in most public stalls. Just for the record!

Posted by motherknowsbest on 07/26/2010 at 4:03 PM

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